However, certain supportive treatments can be done to correct the symptoms. She graduated in accounting and business. Through a GP friend I insisted upon Kerry having a full blood test and found her thyroid levels were down. The reduction in life expectancy is up to 13 years. She burst out into a loud, hearty belly laugh and said, “Oh my God! I have a pacemaker. To the above poster, non-functioning ovaries will NOT affect sex drive (libido). Living with a genetic or rare disease can impact the daily lives of patients and families. she will walk if I walk with her but she doent wanna go by her self ? My sistercwas diagnosed with Turner’s around 5 years old. I have a bicuspid aortic valve, but no narrowing of the aortic arch. It can help clear up some of the misconceptions about TS. I am having a great career as a registered nurse and have traveled widely. is updated regularly. She cancelled her dietition because she too busy. Diagnosed with Mosaic Turner’s Syndrome in my early 20’s. Life expectancy is slightly shorter than average but may be improved by addressing and treating associated chronic illnesses, such as obesity and hypertension. No children, menopause at 24 years old. 23rd chromosome missing in Turners syndrome, Picture 2 – Symptoms and signs of Turners syndrome, Picture 3 – broad shield chest in Turner’s syndrome, Picture 4 – Puffy Feet in Turners syndrome, Image Source – By rodney419153360 | 1 post, last post over a year ago. Crossref Medline Google Scholar; 6 Gravholt CH, Juul S, Naeraa RW, Hansen J. Morbidity in Turner syndrome. She’s doing great. Up to 45% of patients with Turner’s Syndrome have congenital heart problems. She will fall behind in work.she is watching what she eats to the extent that she looks up wat calories it had. These hormones are usually affected by the change in estrogen levels. It’s unbelievable that doctors would be making wise-ass cracks to a patient. Females with Turner’s Syndrome usually reach 50 years of age. T They are more likely to be employed than other adult women. My advice to others is to be supportive, get the necessary checkups and stay on top of it, if you don’t like the answers you get, keep asking. School nurse sent home notes regarding height and so I saw the Pediatrician again to see if any problems and she said no. I get ocd and bet I have cried over this site many times good to hear from healthy happy ts women ..and syndromes Pedia and all these other sites need to update..hurts me, I am a 23 yr old wife of five yrs…my husband and I lost our daughter in june 2011 to turner syndrome…difficult thing to experience…. She has always had a normal checkup, although if I remember correctly, they can develop a thinning of the aorta at a later time especially if they are on growth hormones. Some women with Turner have problems with their heart function. She didn’t let the 4’9″ hurt her. She graduated from college and went on to do another course at SMU in computers. Do not be afraid, learn all you can learn about it so that you’ll know what to expect more, and just be prepared to fall in love when you see her…she will be perfectly imperfect, as we all are….she will bless many lives if you can focus on her strengths and not her weaknesses…she will learn to do the same. I couldn’t imagine life with out her to learn on, have fun with, and talk too. Our daughters are amazing, intelligent girls, in their 20’s now and we love them more than anything. The hormones are expensive plus she said they are not approved but have been used for several years and work on many women. I send my thoughts and love to you and your family.xx. When I got diagnosed, it was by an endocrinologist. Hello, My daughter has turner syndrome. Type 1 diabetes can also occur during childhood as a result of affectation of the cells in the pancreas that produce insulin. Karyotyping is the analysis of the chromosomes and chromosomal compositions of an individual. Anyway, he met someone else and started dating her, and she got pregnant when he was l7. rodney419153360 over a year ago. I was lucky that the teasing was minimal. I am very attractive. Turner syndrome can potentially significantly affect quality of life. My only regret is children. I am a registered nurse who worked for about 27 years. It is approved by the Food and Drug Administration for the management of Turner’s Syndrome. This seems to help all my children especially when they feel they are the only one dealing with something whether it is TS, ADHD, Diabetes, etc. Is there anything that can be done to improve the way she walks? Turner syndrome is a chromosomal condition that alters development in females. Well I did thanks be to GOD. Bone fractures may also develop as a result of osteoporosis. So the one thing they said she wouldn’t be good at ====she is—-math and sciences. What this site is saying about heart defects isn’t all accurate. After a few years of dating we married and entered a donor egg IVF program. They do a lot of work with children and families. God had blessed her with a beautiful voice, a gift. Again, it was a miracle I survived. She seems to have friends at school, but not very many outside of school (in other words, not many invites to do things). She had been married for 13 years to a great guy. Hi,I log on to your blog named “Turner’s Syndrome Pictures, Symptoms, Treatment, Life Expectancy” like every week.Your writing style is witty, keep doing what you’re doing! My genes are 33% normal, and the rest range from 23-39-45, 2% is 45xo. One great resource I can recommend is Claudette Biet-Aaron’s “Standing Tall With Turner Syndrome”. Do you know of an organization? I do have a wider neck and lower neck line . Kerry continued having hormone treatment for the first trimester at diminished rates as the baby’s placenta grew and started producing hormones itself. You may want to review these resources with a medical professional. People with Turner syndrome can lead healthy lives. In Turner’s Syndrome, there is a defect in one of the X chromosome of the female; either it is absent or has defects. What i do not understood is actually how you are not actually much more neatly-liked than you might be now. Not every woman or a child with TS is the same . She is such a kind, caring and lovable person and there isn’t too many people who didn’t like her. Aside from sexual dysfunction, individuals with Turner’s syndrome have cognitive limitations specifically in memory, mathematical and spatial skills. My best friend of 40 years has TS and she is the most wonderful, beautiful person I know. I was kept in the nicu for weeks. I have Turner syndrome and I am a recently retired 65 year old. you’re not always going to have answers but that does not mean that there is no reason because u hve not been given a reason yet. what is the life expectancy for turner syndrome . Inclusion on this list is not an endorsement by GARD. I was not diagnosed until age 22 or 23. I have had a normal life and really enjoy my family. It seems that Turner syndrome is a "random" event, but based on our first pregnancy, are we at a higher risk of having a child with a genetic abnormality? Get in touch with the Turner’s Syndrome Society of America. However, when complications are not detected, patients often die at an early age due to kidney and heart problems. She is alomst 31 now and a very deep loving person. We tried several cycles of IVF to no avail and whilst all the parameters looked ok eg womb thickness, E & P hormones levels it wasn’t working. Not all Ts kids are the same just as no 2 people are the same. I hope you can find happiness like I have. Self-esteem and social adjustment in young women with Turner syndrome--Influence of pubertal management and sexuality: population-based cohort study. It is good to hear that she can have a normal life and achieve whatever goals she might have. People sense something “different” about her, but can’t put their finger on it, so they’re just mean. Genetics play a part in the occurrence of the condition. my 10 year old just got diagnosed…heart tests came out fine, small cyst in 1 kidney and ovaries of course underdeveloped…my question is the heart issue…we were told by 3 different doctors that once you check the heart and valves and its normal there would be no reason to check it again…yet i read here that some check every couple of years…anybody really know the answer,,,btw she has mosaic TS..starting hgh this week…thanks. Contact a GARD Information Specialist. Its like women and men aren’t fascinated except it¡¯s something to do with Woman gaga! I have a daughter who is 43 with TS. As she is 18 Doctor will not talk to me without hr being in the room.she plays harp. It improves breast development, pubic hair growth; and increases the width of the pelvis and the development of other secondary sex characteristics. Diabetes can be prevented through weight reduction. God has a way of doing things and you will know when it’s time for you to know. Turner Syndrome – Life expectancy Women living with Turner syndrome live up to fifty years. The thought of losing a pregnancy weighs heavy.… She graduated from law school top of her glass and now clerks for 4 federal judges. Just keep Faith & Trust in God! My daughter also has a mental stress problem so a little beauty therapy helps now and then. My message to everyone is to never give up. Memory, mathematical and spatial skills, memory and math skills Android systems the disorder must face a test. 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